There are
many discussion groups that offer advice and a means of sharing your
thoughts and fears with other parents and carers.
Cerebral Palsy Forum which presently has
113 members and is one I manage.
You do not have to join the group to read postings from other parents but
will need to if you want to post your own messages. These types of forums
are an ideal way of finding answers to questions that you may have from
people who have been there before you. As a member of the forum you can
choose to have e-mails delivered direct to your inbox or to view them on the
website. Please note: it is important that you look into any answers
you are given for yourself as this site cannot be held responsible for
misinformation obtained from individuals.
Cerebral Palsy Kids run by Katy a young lady with CP. This group is run
for children with CP to interact with each other and share their own
stories, thoughts and fears. If you are unsure whether you want your child
online with other children, you are always able to visit the forum yourself
and see what's going on and what kind of messages are posted. It is worth
remembering that whilst you do need to protect your child to a certain
extent, cocooning them and shielding them from the world will serve no
purpose, they need to be ready and able to take it on, head on. Whilst as
parents we would like to think that our children would share all their fears
with us, we should know from our own experiences as children that this is
generally not the case - children often shield their parents!!!!! Actually,
that leads me nicely to something I wrote a few years back. Its called remember...and it is worth remembering.