For
a parent, a diagnosis of Cerebral Palsy in their child brings with it additional emotional
demands and stresses, the possibility of lifting and
carrying for many years, along with pain, guilt, bewilderment and fear.
They will have to cope daily with able bodied people taking parking spaces
designated for them, health professionals patronising them and a world
that in the main, does not care about disabled people and their
inclusion.
They have many new things to learn in order to care for their child and to
help them achieve their fullest potential, whatever that may be.
Everything is over and above that of caring for a non-disabled child, for
example, they will worry more about their child's future and will also
start worrying about it much earlier. Will their child be able to go
to mainstream school or not? Even the child has the ability, if there
isn't access they will have to decide whether to do battle or go for the
option that doesn't involve yet another fight.
There
are many ways in which you can help to relieve, or indeed, not add to the
stresses they face:
Offer
assistance - this
might be taking out or baby sitting other siblings or the disabled child.
Listen
to what they tell you - take it in. They might be trying to tell you
something subtly.
Be
honest - about your thoughts/feelings towards the child,
obviously trying not to cause offence. Some people with disabled children
prefer not to talk about it, many would like to talk but think
others might feel uncomfortable.
Ask questions - if you do not know what parents need from you, simply ask
them, especially if you are wanting to help. You might even consider
finding out more about the disability.
Have
patience! - appreciate
that they may be late, everything takes more time and there can often be
more unpredictable events that cause delay.
Be
considerate and thoughtful - if you invite them over and the
child is mobile for example, or in a wheelchair, think about how they will
get around your home. Are there any obstructions by the doors that needn't
be there, these things are often overlooked. No-one is suggesting you
re-arrange you house, but if they are regular visitors, you may want to
make a few changes to make things as easy as possible.
Be
realistic not over optimistic - a child with Cerebral Palsy
will never grow out of it and it doesn't help when people suggest that
they will. Friends and family often do this as a way of trying to help but
it doesn't and can sometimes make parents angry because it feels as though
people aren't listening to what they tell them.
Be
there - parents often feel alone in their struggles to bring up
their disabled child. They go through a great deal of emotional turmoil.
It can be very therapeutic to have someone to talk to.